I'm from Japan. I come to live in the USA after the March 11 Tsunami disaster. I lost everything I own. Including some family. It is hard to begin a new life in a different country I never been to before. I am on a ESL program at local community college. I do not know what I want to do with my life. I live with crohn's disease. My life with this disease make it very uneventful. So I play video games a lot. I am in and out of hospital here because my disease began to "fester" my GI doctor tells me. Surgery may have to happen. I want new friends.. It is hard for me to socialise because I do not know how americans take my culture as not to offend if I say something out of the ordinary.
Sorry I am not saying much. I really am not feeling very well my crohn's acting up. im afraid of my doctor visit coming up
Hi and welcome to the MDL forums, Tomoko. I am sorry for what has happened to you and your family. It must be really hard to have lost everything and to start over in a totally different country. After 5 posts are made a chat box will be visible. Feel free to post whenever you like. MDL is a strong community with a lot of kind members. I am sure you'll find friends here. If we can something do for you, feel free to PM me or the MDL team. All the best, Yen.
Welcome to the U.S. Sorry you came here under such dire conditions. If you are in my area of the northwest, I can help with adjusting to American society. A new country to live in can be difficult for anyone, especially with the added conditions you have.
tips to socializing- try to stay clean looking, and smell good-general hygienics just be yourseld, if they don't like it to bad
my life is not getting any easier. my next door neighbors in this condominium I live in are nice elderly white folks. They know im having a tough time with my illness so the old lady who live next door sometimes come over in morning hours and helps me because I am too weak and bed ridden of this..unfortunately, there is no cure for Crohn's disease..I've never heard of it before but I am learning about it..I was just diagnosed with it last month. I have severe back and stomach pain, and vomiting. it kept getting worse until I finally drove myself to the hospital. I was scared. I may have to go back in again..I have been there twice now already. they possibly might have to remove over 15 inches of my small intestine.
I haven't studied medicine, but I am working in the parmaceutical industry. AFAIK the only way to fight Crohn's disease is to maintain remission and to prevent relapse. There is no cure. A special diet might help. Medications are usually anti-biotics, anti-inflammatory drugs and corticosteroids...but I am no doc. I generally suggest to consult 2 different specialists to get independent opinions, especially when one suggests to undergo surgery...... All the best.
you have crohn's too? Surgery right now seems inevitable. I go to see a surgeon today for an orientation for surgery. they said they would like to remove 16" of my small intestine..there are fistula webbing all inside there and the pain from those really hurts..doesnt matter what I eat. I get pain all around. They say it is rare for asian people to get IBD. I guess I was one of the the lucky ones
No, I don't have Crohn's. I am working in a lab researching for (phyto)-medicine. I know about Crohn in theory only. But I am no physician Normally they try to preserve every inch they can, there are also methods of surgery which only need a small cut. Finally you have to trust the experts. What can I say to console you? When I was a child I had to undergo all together 5 surgeries as well. 4 of them had been concerned the eye. (I had been cross-eyed and the surgeries had been a must, else I had became blind on one eye). I know fear and hope and I know what it means to feel alone and a bit lost and I know pain. But I also have got friends there in the hospital, friends which also had to undergo surgery, one of them even had became blind on one eye.... The only thing that helps is to never give up, to think positive. Also the belief that everything has finally a good end and that you are never alone, even though there are hours you can't believe that. I am thinking of you and I wish for you all the best. Feel free when ever you like to post here. Yen.